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    Sunday, May 05, 2002

    Score One for the Autism Lobbyists: Time magazine made the autism “epidemic” its cover story. Funny thing, though, the story was largely devoted to those lovable “mildly autistic” kids, not the severely autistic who are truly deserving of our compassion and help. Expanding the definition of autism to include children whose behavior is really only a variant of normal does no one any favors, least of all the children. Take, for example, Tommy Barrett, the boy in the article. He is by all accounts quite bright, having taught himself to read at the age of four, and he really seems engaging by the description of him. His main problem seems to be that he was fidgety in his elementary school reading group. Well, of course he was fidgety, he already knew how to read. Under another system, he would have been labeled “gifted” and gotten special attention in a postive way, but evidently his school system gets more aid from psychiatric labels and he was called “mildly autistic” instead. This subjected his parents to unnecessary grief and worry, and labeled him in a way that is surely going to influence the rest of his life adversely. The diagnosis has clearly warped his mother’s view of him:

    “Children on the autistic spectrum, however, are "mind blind"; they appear to think that what is in their mind is identical to what is in everyone else's mind and that how they feel is how everyone else feels. The notion that other people — parents, playmates, teachers — may take a different view of things, that they may harbor concealed motives or duplicitous thoughts, does not readily occur. "It took the longest time for Tommy to tell a lie," recalls Pam Barrett, and when he finally did, she inwardly cheered.”

    She cheered because he lied? What's wrong with her? The “notion that other people..may take a different view of things, that they may harbor concealed motives or duplicitious thoughts” does not occur “readily” to any child. This is something we all learn as we grow older and get knocked about by the world. It isn’t merely a part of the “autistic spectrum,” it’s part of the spectrum of all human behavior. This is fundamentally what’s wrong with calling Asperger syndrome (also known as "mild autism" or the "geek syndrome") a disease. All human behavior falls along a spectrum of normal to abnormal. The question is, what’s truly abnormal and thus worthy of the “disease” label? Asperger syndrome surely isn’t. Those who can be categorized as having it live healthy, successful, productive lives. We should think twice before shutting down their beautiful minds, whether with medication, genetic engineering, or behavioral therapy, just because they don’t fit some arbitrary definition of normal.

    As for the explosion of cases of autism, that, too, is a myth. The incidence of autism isn't expanding, only our definition of it is. This may seem like trivial semantics, but by exaggerating the prevalence of a condition, lobbying groups like the Autism Society of America can get public money diverted from more worthy causes into their own coffers. This is just plain irresponsible.

    It's also irresponsible to try to pin blame for this pseudoepidemic on a childhood vaccine that has done much to decrease morbidity and mortality in childhood, the measles, mumps and rubella vaccine. There is absolutely no evidence that the vaccine is related in anyway to autism. It just happens to be a vaccine that is given at the time when children begin to interact with the world in any meaningful way, and so when any deviations from normal behavior would be noticed. Time hasn't done anyone any favors with this article.
     

    posted by Sydney on 5/05/2002 02:04:00 PM 0 comments

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