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medpundit |
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Monday, January 06, 2003One of the patient advocates who served on the Clinton version of this committee, but is not on the Bush version, is the president of the National Organization of Rare Disorders. NORD does a lot of good work. It’s a tremendous resource for people with rare diseases. It also happens to count among its hopes for some of those rare disorders, research on embryonic stem cells. Then, there’s the guy who resigned immediately upon learning of his appointment. He wasn’t an industry leader, but a bioethicist, and also a former Clinton appointee. His reason for resigning: .... he has no intention of joining, he said, given the committee's new embryo-oriented charter and its research industry-heavy membership, which includes the heads of research from several public and private for-profit research institutions. It would have been less tilted toward industry if he had stayed on board, but evidently he’s too offended by the audacity of the Administration to consider embryos and fetuses as human life. Protesting the inclusion of embryos in the category of human life is evidently more important to him than protecting the interests of adult research subjects against industry. posted by Sydney on 1/06/2003 08:15:00 AM 0 comments 0 Comments: |
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